In a recent Duchenne support group, our fabulous leader asked us to write a letter to ourselves from Fear. Pretend Fear is a person – what would Fear say to you? Followed by a response. Here’s my letter:

Dear Alicja,

First of all, thank you for listening. I want you to know that I’m always here for you – in the good and the bad. I’m here for you as a signal to pay attention, I’m that little thought in the back of your head that makes you have a light bulb moment and watch your surroundings. I am fear … but you need not fear me. I like to bring awareness to you, especially in situations you are unfamiliar in or uncomfortable in. I’d like to think I give you a chance to think twice about reacting and help you choose a wiser path forward. The world may be a scary place, but it’s easier to decide on which fork in the road to choose when you are given a little bit more information – when you can feel the situation out a little more. Balance – balance between leading with the heart and focusing with the mind – feel fear but don’t be afraid.

Dear Fear,

I appreciate you. Thank you for showing me a different perspective. For allowing me to be flexible and for seeing more than one version of a situation. What others may see as hesitation, it is me listening to you and figuring out where that balance lies for me and what I am comfortable with. You also allow me to plan for the worst even while I hope for the best – which allows me to be better prepared for both the immediate challenges and those that may be years away. They say it takes a village … and between fear, love, joy, sadness and everything in between – you lead me to make the best choices for my and my dear ones.